Core Clinical Data Set Supports High-quality Care for RA Patients in Canada (CAN-RACCD)

Variability in clinical data collection has been identified as a barrier to quality measurement since it creates challenges in terms of maintenance of complete patient records and monitoring the provision of care. The AAC partnered with the Canadian Rheumatology Association (CRA) and individual investigators to develop a Canadian Rheumatoid Arthritis Core Clinical Dataset (CAN-RACCD) to encourage best practices and to facilitate future quality measurement efforts. The CAN-RACCD was developed through a three-phase program that included an environmental scan to identify a candidate set of core data elements, stakeholder meetings to prioritize elements for inclusion, and a modified-Delphi process to finalize the core clinical dataset. Broad input was gained from 47 rheumatologists, people living with arthritis, and allied health providers from across Canada. The CAN-RACCD includes 49 individual data elements across nine categories, such as:

1) demographic

2) dates

3) clinical data

4) disease activity

5) comorbidities

6) smoking status

7) patient-reported outcomes

8) medications

9) laboratory and radiographic data

This is an important first step in standardizing measurement that will help improve the routine quality of care of people living with rheumatoid arthritis.

Please click here for an open access manuscript by Barber C et al. Development of a Canadian Core Clinical Dataset to Support High-quality Care for Canadian Patients with Rheumatoid Arthritis. (J Rheumatol. 2017 Dec;44(12):1813-1822. doi: 10.3899/jrheum.170421. Epub 2017 Oct 1.)

Thursday, October 26th

Public Health Agency of Canada: National surveillance of arthritis in Canada: Results from the Canadian Chronic Disease Surveillance System 

Arthritis Consumer-Patient Organizations and Groups Coalition Workshop: Patient Experiences and Perspectives of Inflammatory Arthritis Models of Care: Gaps, Solutions and Pushing for Implementation

AAC Research Workshop/Session: Building an Economic Business Case for Models of Care for Patients with Inflammatory Arthritis (IA) –includes slides from Expert 

Friday, October 27th

 AAC Joint Arthritis Models of Care (IA/OA) Workshop: Quality Improvement – Using the Model for Improvement to Implement IA and OA Models of Care

AAC Inflammatory Arthritis (IA) Models of Care Workshop for Early Career Rheumatologists: Setting up a Model of Care in Practice at the Start of Your Career 

The Arthritis Alliance of Canada (AAC), The College of Family Physicians of Canada (CFPC) and the Centre for Effective Practice (CEP) have developed the Osteoarthritis Tool  to provide family physicians and health care providers with key professional knowledge and skills necessary to:

    • effectively identify, assess, monitor and care for people with OA
    • help OA patients take an active role in their self-care – by providing access to the right information and resources, at the right time, with the right providers
    • help family physicians and other healthcare providers understand that OA is a common, treatable, chronic illness identify, assess, and monitor OA
    • recommend specific non-pharmacologic and pharmacologic therapies.


We encourage you to support this important initiative and share it with staff members, local stakeholders and other clinicians, and collegues:

    • Post to your website: Joint AAC-CFPC News Release; an OA Tool, and OA Tool banner
    • Post to Facebook
    • Post to Twitter using the hashtag #OATool
    • Promote this initiative among your professional networks, such as LinkedIn, using the hashtag #OATool
    • Send an OA Tool postcard by mail or email or use it as a leave-behind
    • Share your feedback and impressions on using the Tool and how it is helping in your practice in the AAC newsletter; as well;
    • Send your comments or contact Lina Gazizova Cette adresse e-mail est protégée contre les robots spammeurs. Vous devez activer le JavaScript pour la visualiser.  if you need any further details or require additional materials.



Osteoarthritis Tool


L’Alliance de l’arthrite du Canadale Collège des médecins de famille du Canada (CMFC) et le Centre for Effective Practice (CEP) se sont associés pour créer un Outil d’information sur l’arthrose.

 L’outil sur l’arthrose a été développé pour fournir aux médecins de famille et aux professionnels de la santé des connaissances et des compétences professionnelles essentielles pour :

    • identifier, évaluer, surveiller et traiter efficacement les personnes atteintes d’arthrose
    • aider les patients atteints d’arthrose à jouer un rôle actif dans leurs soins en leur donnant accès à de l’information et des ressources pertinentes les dirigeant vers les professionnels appropriés, et ce, au bon moment dans leur parcours de soins.
    • aider les médecins de famille à comprendre que l’arthrose est une maladie chronique courante et traitable
    • recommander des traitements spécifiques non pharmacologiques et pharmacologiques

Nous vous encourageons à partager l"Outil avec votre personnel, les intervenants locaux, d'autres cliniciens, ainsi qu'avec vos collegues:

    • Publiez sur votre site Web : Le communiqué conjoint de l’AAC et du CMFC; Une version légèrement mise à jour de l’Outil et La bannière de l’Outil sur l’arthrose
    • Publiez sur Facebook
    • Publiez sur Twitter en utilisant le mot-clic #Outilarthros
    • Faites la promotion de cette initiative dans vos réseaux professionnels, y compris sur LinkedIn, en utilisant le mot-clic #Outilarthrose
    • Partagez vos commentaires et vos impressions après avoir utilisé l’Outil et dites comment il vous aide dans votre clinique dans le bulletin d’information de l’AAC!
    • Envoyez vos commentaires à Lina Gazizova, Cette adresse e-mail est protégée contre les robots spammeurs. Vous devez activer le JavaScript pour la visualiser. , ou contactez-la si vous avez besoin de plus d’information ou de matériel supplémentaire.



Un Outil d'information sur l'arthrose

vandanaDr. Vandana Ahluwalia
Corporate Chief of Rheumatology, William Osler Health System Center 

Dr. Vandana Ahluwalia heads the Rheumatology Division of the William Osler Health Centre in Brampton, Ontario. She sees patients in her Brampton community practice as well as in the combined Rheumatology/Orthopedics MSK clinic at Brampton Civic Hospital. A graduate of Queen’s University and the University of Toronto Medical School, she continues to be actively involved in clinical trials and studies related to inflammatory arthritis and has co-authored various articles within this therapeutic area.

Dr. Ahluwalia has been actively involved as an OBRI investigator since its inception in 2008. She is a committed member of the Planning & Review Board leadership team and has also been nominated to chair several Industry Council Meetings.

Most recently Dr. Ahluwalia held the position of President for the Ontario Rheumatology Association. She continues to remain active within her professional association as Director of Models of Care and leads 2 important committees namely, the New Models of Care (MOC) committee and the Electronic Medical Records (EMR) committee. Through her leadership, the MOC committee has been working to identify strategies that accelerate access to care for inflammatory patients while delivering improved health and system outcomes. There continues to be a growing adoption of EMR into clinical practice and Dr. Ahluwalia is actively championing the needs of her colleagues to ensure that Rheumatology specific tools are fully integrated within existing EMR platforms. With point of care tools in place, data can be pulled seamlessly into the large observational databases such as the OBRI research platform. In 2012, Dr Ahluwalia received the Community Rheumatologist of the Year award by the University of Toronto, Rheumatology Division. Recognized by her peers, and the Ontario Rheumatology Association in 2013, Dr. Ahluwalia also received the ORA President’s Award for her “brilliant leadership, commitment to excellence and unsurpassed effort.”