The Arthritis Alliance of Canada (AAC) is ceasing its operations at the end of December 2019. This website will be kept live as an archive of all AAC reports, publications and tools until end of February 2025; however, its content won’t be updated. If you wish to contact any of the AAC member organizations, please visit the membership page to connect with the member organization of your interest.
Un groupe de travail composé de représentants d’organisations dirigées par des patients et axées sur les patients, en étroite consultation des experts cliniques et scientifiques du domaine de l’arthrose, a créé le document « Parlez de vos douleurs articulaires à votre médecin », un feuillet complémentaire à l’Outil sur l’arthrose pour les médecins de famille.
Le document « Parlez de vos douleurs articulaires à votre médecin » a été créé pour :
Nous vous encourageons à partager le document avec votre personnel, les intervenants locaux, d’autres cliniciens, ainsi qu’avec vos collègues.
Core Clinical Data Set Supports High-quality Care for RA Patients in Canada (CAN-RACCD)
Variability in clinical data collection has been identified as a barrier to quality measurement since it creates challenges in terms of maintenance of complete patient records and monitoring the provision of care. The AAC partnered with the Canadian Rheumatology Association (CRA) and individual investigators to develop a Canadian Rheumatoid Arthritis Core Clinical Dataset (CAN-RACCD) to encourage best practices and to facilitate future quality measurement efforts. The CAN-RACCD was developed through a three-phase program that included an environmental scan to identify a candidate set of core data elements, stakeholder meetings to prioritize elements for inclusion, and a modified-Delphi process to finalize the core clinical dataset. Broad input was gained from 47 rheumatologists, people living with arthritis, and allied health providers from across Canada. The CAN-RACCD includes 49 individual data elements across nine categories, such as:
1) demographic
2) dates
3) clinical data
4) disease activity
5) comorbidities
6) smoking status
7) patient-reported outcomes
8) medications
9) laboratory and radiographic data
This is an important first step in standardizing measurement that will help improve the routine quality of care of people living with rheumatoid arthritis.
Please click here for an open access manuscript by Barber C et al. Development of a Canadian Core Clinical Dataset to Support High-quality Care for Canadian Patients with Rheumatoid Arthritis. (J Rheumatol. 2017 Dec;44(12):1813-1822. doi: 10.3899/jrheum.170421. Epub 2017 Oct 1.)
A Working Group, composed of representatives from arthritis patient-led and patient-focused organizations, in close consultation with scientific and clinical experts in osteoarthritis, has developed the Talk to Your Doctor About Joint Pain Handout, a complementary version of the original Osteoarthritis Tool for Family Physicians.
The Talk to Your Doctor About Joint Pain Handout has been designed to:
We encourage you to share it with staff members, local stakeholders and other clinicians, and colleagues.
Thursday, October 26th
AAC Research Workshop/Session: Building an Economic Business Case for Models of Care for Patients with Inflammatory Arthritis (IA) –includes slides from Expert
Friday, October 27th
AAC Joint Arthritis Models of Care (IA/OA) Workshop: Quality Improvement – Using the Model for Improvement to Implement IA and OA Models of Care
AAC Inflammatory Arthritis (IA) Models of Care Workshop for Early Career Rheumatologists: Setting up a Model of Care in Practice at the Start of Your Career
L'Alliance de l'arthrite du Canada cesse (a cessé) ses activités à la fin de décembre 2019. Ce site Web sera conservé sous forme d'archive hébergeant tous les rapports, publications et outils de l'AAC jusqu'à la fin de février 2025; cependant, son contenu ne sera pas mis à jour.
Si vous souhaitez contacter l'une des organisations membres de l'AAC, veuillez visiter la page des membres où vous trouverez un lien vers l'organisation membre qui vous intéresse.